How far leisure activities are affected by MND of course
depends on the kind of symptoms each person has and how quickly they progress.
Many people could still pursue their existing interests - for example, a man
whose speech was unaffected still enjoyed regular games of golf with friends
and a man with limited arm and leg movement continued to sing in a choir. Some
found ways to continue favourite hobbies or activities despite physical
difficulties, sometimes with the help of family and friends. A few people said
they were not happy about taking to a wheelchair but were glad of the freedom
it gave them to move around more easily and go on outings.
People continued to take part in a range of other
activities, including going to the gym, painting, music, cookery, creative
writing, community volunteering and fund-raising, eating out, going to the
theatre, local history societies and adult education courses. Many stressed how
important they felt it was to keep active. At the same time, however, many had
to give up things they enjoyed doing, and said how much they missed certain
activities. Gardening and walking were often mentioned, but also various forms
of sport, dancing, and general social activities such as eating out or going
for a drink. Several people first noticed symptoms while they were doing the
things they loved most, and the idea of losing such an important aspect of
their life was sad. As one woman said, “Sport? That's a huge loss. It meant
everything.”
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